California Government stores DNA of born baby the year after 1983. This may be for making available to law enforcement and may even be in the hands of outside researchers. The material is then stored for good in a state-run biobank, where it may be purchased for outside research.
State law requires that parents are informed of their right to request the child’s sample be destroyed. However, the state does not confirm parents actually get that information before storing or selling their child’s DNA.
In light of the previous scandals, there are new concerns about law enforcement access, and what private researchers could do with access to the DNA from every child born in the state.
The Newborn Genetic Screening test is required in all 50 states, and it can be said miracle of modern medicine. Near about every baby born in the U.S. gets a heel prick shortly after birth.
It is used to test baby for dozens of congenital disorders. If treated early enough, could prevent severe disabilities and even death. The California Department of Public Health reports that from 2015-2017 alone, the Newborn Screening test diagnosed 2,498 babies with a “serious congenital disorder.”
Even though the parents pay for the lifesaving test itself, the child’s leftover blood spots become property of the state. And it may be sold to outside researchers without the parent’s concerns.